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http://0rz.tw/CCefo


Anthony Senerchia, whose struggle with the motor disease amyotrophic lateral
sclerosis (ALS) was an early inspiration for the viral “ALS Ice Bucket
Challenge,” died November 25 after a 14-year long battle with the disease,
according to an online obituary. He was 46.


Senerchia, from Pelham, N.Y., was diagnosed with the disease in 2003, shortly
after marrying his wife Jeanette Hane. He was given only a few years to live,
but he powered through the disease for the next 14 years, his obituary reads.


“It’s a difficult disease and tough when you’re losing,” his wife
Jeanette Senerchia told the Journal News. “Your body is failing you. But he
was a fighter…He was our light. He made our life better.”


Senerchia created the Anthony Senerchia Jr. ALS Charitable Foundation, which
helped fund research at the Columbia Presbyterian Medical Center for ALS
research and aided families affected by the disease, according to his
obituary.

根據訃聞，Senerchia創造了一間Anthony Senerchia Jr. 漸凍人慈善機構，幫忙哥倫比亞的老人醫療中心經費來做ALS研究，並且幫助被影響的家庭。

But he was most well known for being the genesis of a global sensation - the
ALS Ice Bucket Challenge, which tasked people with pouring buckets of icy
water over their heads both to raise awareness of ALS and to encourage
donations into cures and treatments.

他最為人知的就是他是全球轟動一時的活動：ALS冰桶挑戰的發起人。而這活動就是把冰水從頭倒下去來提升對漸凍人的意識以及鼓勵對醫療病情的捐款。

It all started when Jeanette’s cousin Chris Kennedy, a professional golfer,
challenged her and a few others to take part in an ice bucket challenge in
2014.

這活動從Jeanette的表哥，職業高爾夫選手Chris Kennedy在2014年時挑戰她以及其他人，來參加冰桶挑戰。

“He sent it to me as a joke and then it turned into something extraordinary,
” Jeanette told the Journal News.

「他一開始只是玩笑式的傳給我，結果沒想到這竟然成了非常了不起的事情。」Jeanette跟Journal News說。

Eventually, word of the challenge spread through the small town of Pelham, as
people began to associate the challenge with ALS and Jeanette’s husband
Anthony, according to TIME. Eventually, the challenge spread to another man
living with the disease named Pete Frates. He posted a video to his large
social media following, and “that’s when the campaign really became viral,”
 TIME reported.


Over the next several weeks, the challenge became massively popular,
resulting in an estimated 17 million videos and the collection of about $200
million for ALS research and advocacy organization, reported ALS News Today.
Millions of ordinary people shared and made videos, and famous figures
including Chris Pratt, Ben Stiller, Stephen Spielberg, Taylor Swift and many
others participated too.


“We just have so many amazing people in our community. I can’t even tell
you. They’re just so generous, and they just want us - have good things to
come to other people who are hit with this disease,” Jeanette told PIX 11 in
2014, as the viral sensation was still raging.


Senerchia survived another three years after the beginning of the challenge,
long enough to see the original ice bucket used by his wife inducted into the
Smithsonian Institution’s National Museum of American History.

Senerchia在挑戰之後活了另外三年，見證到他老婆一開始使用的水桶成為了史密森尼美國歷史博物館的展覽之一。

“Anthony will be remembered as a fireball who tried everything in life,”
 his obituary reads. “He was family oriented, generous and always ready to
lend a helping hand. He was a great husband, a proud father, a loving son and
a great brother. He will be missed by everyone who knew him.”


https://i.imgur.com/TfoaxZK.jpg

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備註：
樓下金城武的冰桶挑戰影片
https://www.youtube.com/watch?v=2U2y2ELjLL8

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